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Nine-year-old Novalie has a rare and fatal disease: Childhood dementia. When her mother, Marlene, received the diagnosis, she was so devastated that she said, “I wanted to die with her.” Novalie is slowly losing her speech, memory, and movement. Doctors say she won’t live to become a teenager. Despite the heartbreak, Marlene fights daily to give her daughter joy and dignity. “There is no treatment, no hope,” she says. But still, she finds light in the dark: “She smiles. She laughs. That means everything.”
Photographer / Company
L. Kelly Jones
Category
Nature Photography - Cityscape
Country / Region
United States
Photographer / Company
Mark Seymour
Category
Editorial Photography - Documentary
Country / Region
United Kingdom
Photographer / Company
Anssi Leppänen
Category
People Photography - Portrait
Country / Region
Finland
Photographer / Company
Tim Platt
Category
Fine Art Photography - Still Life
Country / Region
United Kingdom